The most heartbreaking words you can hear as a parent: your baby isn't going to make it very far or long.
So today we cry many tears but we also give many, many grateful thanks for blessing us with the gift of baby Idrees who is here despite all the odds and has given us countless moments of joy throughout his short existence.
We aren't medics so some of what they say goes above our heads and watching him twitch and move, curl his little fingers around mine a part of my mum heart says "he is fine, guys". But the tests and scans and echoes and results don't really lie.
Our choice is pushing him forward for a surgery he may never make it out of and struggle to cope with the effects of afterwards or to just let him decide when he has had enough of this silly, boring world and take care of him the best way we know how till then.
My eyes are full of tears, heart full of a smile. We may only get to keep you a while, precious little beautiful one, but every single second has been more than worth it.
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