Normal is a funny word. If this were a normal pregnancy, I would probably be deep into nesting mode and buying up a storm. As it stands I'm cautiously adding only a very select few items to my online shopping basket all the while justifying to some invisible person "I'll need this no matter what happens to baby".
When you have a pretty serious diagnosis for baby's health hanging over your head it's hard to throw caution to the wind and allow yourself to work on best possible scenario mode.